Meet Katelyn
Katelyn

Katelyn has been diagnosed with Sturge Weber Syndrome and is now 15 years old. Katelyn also has glaucoma in both eyes.  In her left eye she went through two surgeries to try to prolong her vision, 1st – tube shunt, and then she  had a retinal reattachment  and surgery.

Unfortunately, Katelyn has been diagnosed with Sturge Weber Syndrome and is now 15 years old. Katelyn also has glaucoma in both eyes.  In her left eye she went through two surgeries to try to prolong her vision, 1st – tube shunt, and then she  had a retinal reattachment  and surgery. Unfortunately, these surgeries did not sustain her vision and Katelyn has lost her vision in her left eye.  Due to the continued high pressures in her right eye, the doctors are now recommending surgery on her right eye. Katelyn described by mom as a old soul in a young girls body has a wish to see and experience Niagara Falls while she still has her vision. We can not wait to share this experience with Katelyn.

Visual Experience Foundation is a 501 (c) (3) nonprofit organization dedicated to providing memorable Sight Visits and support to children and adults who have been diagnosed with unstoppable vision loss.

Visual Experience Foundation

P.O. Box 346

Spring Lake, New Jersey 07762

Email

Tel: (732) 616-3304

Connect online:

  • Facebook Clean
  • Twitter Clean
  • White YouTube Icon
  • White Instagram Icon
  • White LinkedIn Icon